Wednesday, January 20, 2010

Chapter 2 - Section E - Personal Experience

It has been my personal experience that not everyone feels the same way about Fibromyalgia. Despite the fact that it has become a more widely accepted diagnosis, there are still doctors who “don’t believe in it.” In fact, my Neurologist does not believe that this is a valid diagnosis. He told me that he feels that it is a lazy diagnosis by doctors who do not want to search for the “true problem.”


I have also discovered that many people have never even heard of Fibromyalgia or have heard an incorrect definition of what it is. When I told my parents about my diagnosis my dad thought the doctor had the diagnosis wrong because he did not think that someone my age could get Fibromyalgia.


It is my personal opinion that these two problems are two of the most discouraging problems that people with Fibro can face. People doubting us makes us doubt ourselves. We begin to believe that we must be crazy because everyone else thinks so. The diagnosis is very reaffirming because there is a doctor telling us that we are NOT crazy. When another doctor tells us that the diagnosis isn’t even a real thing, the doubt in ourselves is redoubled. It is a huge vicious circle that can worsen our condition.


It is important to realize that there are new medical advances made every day. Not every problem has been fixed or even diagnosed. Doctors in the early 1800’s didn’t believe in germs or microscopic organisms! They used to use disgusting leaches to cure people!! We can not allow ourselves to be discouraged simply because there isn’t enough scientific evidence yet to support us and discover a cure.

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